Hello friends and family,
We are happy to report that we were able to bring Noah home yesterday. We have actually stayed in Bountiful to be closer to the hospital in case anything happens and we will be here for a couple more days.
So now, for the results. Well, based on a blood test, the Dr.'s found the Noah's blood infects other 'clean' blood, so the thought is that he had a virus. This particular virus prevented Noah's blood from clotting correctly and therefore, caused seizures. There are so many viruses in the world that they can't test for all of them, only six. So that is that. Noah is on anti-seizure medication for the time being and he will be continually monitored by his pediatrician and neurologist and hopefully will be able to go off the meds within a few weeks.
Now a quick word about Noah's seizures. I am telling you all of this so that you know one if you see one, as several nurses and doctors in the ER on Saturday night did not recognize them as such... The seizures that Noah had were not the typical jerking limbs and eyes rolled back in your head that most people imagine when you hear the word seizure. Noah's eyes would look straight up and fixate on something toward the ceiling. His fists would clench and he would be completely unresponsive to any stimulation, including his Granpda shouting his name. He would then go into a very drowsy sleepy state and would still not respond to his name, light in his eyes, etc. Then, as he was coming out of the seizure, he would get very upset and start crying and or screaming. He would have times of delirious laughter and start pointing to things he was seeing in the air and then it would start all over again. This is just a brief description... I just want everyone to be aware that this type of behavior is in fact a seizure just in case it ever happens to you.
It has been a scary and heartbreaking few days and I am so glad to report that there isn't anything serious to report. I would like to let you all know how much we appreciate the well wishes, the emails, telephone calls, the help, prayers and thoughts. We could not have survived this week without our loving family and friends. Thanks to Steve and Michelle for rushing us to the hospital twice! For helping with our darling Emma... Steve and Michelle, the Kent family, Grandma and Grandpa Deters. For helping make sure we didn't go hungry... my sister, Michelle, my brother, Brandon, and Dianna. And thanks for visiting Noah even though he didn't know you were there... Grandpa and Grandma, Mimi, Nana, Uncle Brent and Aunt Julia, Aunt Michelle, Uncle Brandon and Aunt Julie, Aunt Rondi, Aunt Chelsie and Uncle Blair.
A huge thank you goes to the hospital doctors, nurses and techs that worked endlessly to try to figure this one out... Jodi (who spotted the seizure right away and didn't hesitate 1 millisecond before grabbing the doctor), Dr. McDonnell, Dr. Sweeney, Dr. White and Tina, Stacey, Kelli, Sendiea, Westi, Steve, Tim, Lisa, Paula, Ramon, Madison, Dr. Lloyd, Dr. Cramer, Dr. Brogli, and
several more neurologists, doctors, nurses, techs and blood takers who I can't remember their names... Thanks for not giving up on us and for answering our endless questions. We hope to never see you again!
